Wednesday, March 14, 2007
So CHOP calls this morning and says Katie is cleared to come home tonight! Yay! We were all so excited to have her home with us again!
I finally get to the hospital around 8pm, and as I am dressing her around 9pm (after all discharge papers are signed) her J tube falls out! Nothing can ever be easy with this little girl!
She already had her IV taken out and neonatologist did not want to put another IV in if he didn't have to. So, the nurses ended up putting a feeding tube down her nose temporarily. In the morning, hopefully, her J tube will be replaced and she will come home tomorrow night. We'll see how things go tomorrow.
As part of her discharge requirements, we will discontinue feeding her by mouth for now. Give her time to recover from her aspiration pneumonia. She will continue on an antibiotic for six more days. We are increasing her formula from 35 cc/hr to 40cc/hr, to ensure she is getting the nutrition she needs. We already have an appt on 4/9 to follow up with the feeding team. By that time, hopefully, we will continue to feed her by mouth.
On a brighter note, Emma rolled over for the first time on Tuesday night, 3/13. She does it so easily! She did it twice on Tuesday night, and on Wednesday night, she rolled over like it was nothing, within seconds! And she's scooting around a bit already. Tom thinks she will be the first one to crawl-we'll see!
And even on a brighter note, Emma no longer needs her apnea monitor! I was shocked, because it seemed to be going off a lot lately. The company called today and said they got clearance from the NICU neonatologist who reads Emma's apnea reports. The company said that this past month Emma had 173 incidents (where alarm sounded), however, they were all false! So, they are picking up the monitor tomorrow and we are done with it! Yay-one more thing to cross off the books for my pumpkins!